The organizations listed below provide information and resources on the diagnosis and treatment of sarcoma in children as well as information on programs that provide support to children with sarcoma and their families. We also provide information and resources for adolescents and young adults with sarcoma.
 Organizations that Provide Support and Programs for Children with Cancer
Organizations that Provide Medical Information on Childhood Cancer
Advocacy Organizations
Adolescent and Young Adult Support
Information about Cancer in Adolescents and Young Adults
Adolescent and Young Adult Camps
The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
http://www.children-cancer.com
Formerly the Kids Cancer Network, this organization provides activities such as the Funletter for children with cancer and information for their parents.
http://www.kidscancernetwork.org
This section covers the non-medical aspects of having a child with cancer. These include resources for emotional support and psychological help for parents, support for kids and teens, help for educating a child with cancer, and help with financial, work, and insurance issues.
www.acor.org/ped-onc/cfissues/cfissues.html
This organization works to help children whose parent or other family member has cancer.
www.kidskonnected.org
The mission of Candlelighters is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
www.candlelighters.org
Locks of Love provides hairpieces to financially disadvantaged children in the United States and Canada under age 18 suffering from long-term medical hair loss from any diagnosis.
http://www.locksoflove.org
The Make-A-Wish Foundation enriches the lives of children with life-threatening medical conditions through its wish-granting programs.
www.wish.org
The mission of SuperSibs! is to ensure that brothers and sisters of children with cancer are honored, supported and recognized - so they may face the future with strength, courage and hope.
www.supersibs.org
The mission of the International Confederation of Childhood Cancer Parent Organizations (ICCCPO) is on the cooperation and sharing of information and experiences between parent groups around around the world, so that all can benefit from it and become more effective in improving the treatment and care of children with cancer in their own countries.
www.icccpo.org/
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www.cancer.gov/cancerinformation/cancertype/childhood
cancer.gov/cancerinfo/types/childrhabdomyosarcoma
cancer.gov/cancerinfo/types/ewings
cancer.gov/cancerinfo/types/soft-tissue-sarcoma
The Ewing’s Sarcoma & Pediatric Cancer Support Group Resources Page, providing a wide variety of both medical and support information.
www.cureourchildren.org
A resource developed and maintained by parents of children with cancer. This section covers the types of cancer that commonly affect children. Other sections cover treatment and survivorship issues.
www.acor.org/ped-onc/diseases/diseases.html
CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure.
www.curesearch.org
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The Children’s Cause for Cancer Advocacy (CCCA) works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
www.childrenscause.org
The mission of People Against Childhood Cancer is to raise awareness of childhood cancer.
curechildhoodcancer.ning.com
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The goal of Planet Cancer is to create an international network of young adults, ready and willing to help each other through what may well be the most difficult experience of their lives.
www.planetcancer.org
Group Loop is an innovative and groundbreaking program of The Wellness Community (TWC) to provide online support for teens with cancer and their parents. In addition to Online Support Groups (OSGs), Group Loop offers valuable resources and information for teens with cancer.
www.grouploop.org
Teens Living with Cancer offers sound medical information, endorsed by the premier children’s cooperative oncology research group in North America. It also provides effective psycho-social support designed to enhance a teen’s quality of life, based on real-life experiences of teens with cancer, their families and friends.
www.teenslivingwithcancer.org
The mission of I’m Too Young for This is to empower young adults affected by cancer by ending isolation, improving quality of life and providing meaningful survivorship.
www.imtooyoungforthis.org
The LIVE
STRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.
www.livestrong.org/yaa
The Mission of the Ulman Cancer Fund for Young Adults is to enhance lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.
www.ulmanfund.org
The Young Survival Coalition (YSC) is the premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.
www.youngsurvival.org
Young Adult Cancer Canada is committed to building an independent and sustainable cancer resource that provides hope, understanding, and inspiration to young adults by delivering key positive messages and sharing personal experiences of the challenges and triumphs of cancer by those who have experienced this significant life challenge.
www.youngadultcancer.ca/
The National Collegiate Cancer Foundation’s mission is to provide services and support to young adults who have been diagnosed with cancer. Our goal is to help these survivors and their families establish a “Will Win” attitude in their fight.
www.collegiatecancer.org
Fertile Hope is a national, nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
www.fertilehope.org
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Cancer.Net brings the expertise and resources of the American Society of Clinical Oncology (ASCO), the voice of the world's cancer physicians, to young adults living with cancer and those who care for and care about them.
www.cancer.net/patient/Coping/Age-Specific+Information/Cancer+in+Young+Adults
A Snapshot of Adolescent and Young Adult Cancer
A summary of information on the incidence of cancer among adolescents and young adults along with information on current research published by the National Cancer Institute. The link downloads the report.
planning.cancer.gov/disease/AYA-Snapshot.pdf (PDF)
Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer, Report of the Adolescent and Young Adult Oncology Progress Review Group
A review of the research and care needs of adolescents and young adults with cancer. Published by the National Cancer Institute, the review examines the unique needs of adolescents and young adults with cancer. The link downloads the report.
planning.cancer.gov/disease/AYAO_PRG_Report_2006_FINAL.pdf (PDF)
Closing the Gap: A Strategic Plan for Addressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group
An action plan for the research and care needs of adolescents and young adults with cancer. Published by the LiveStrong Foundation, this action plan builds on the findings of the National Cancer Institute’s report Closing the Gap. The link downloads the report.
www.livestrong.org/atf/cf/%7BD0794917-422C-499C-9C48-9ED3DDC42947%7D/LAF%20YAA%20Report.pdf (PDF)
An article by Dr. Karen Albritton, Chief of the Adolescent and Young Adult Oncology Program at the Dana-Farber Cancer Institute and Assistant Professor at the Center for Sarcoma and Bone Oncology at Harvard Medical School, on current research and care of adolescents and young adults with cancer.
www.sarcomahelp.org/learning_center/articles/aya.html
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The mission of First Descents is to utilize whitewater kayaking and other outdoor adventure sports to promote emotional, psychological and physical healing for young adults with cancer.
www.firstdescents.org
The mission of Camp Mak-A-Dream is to provide a medically-supervised, cost free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer.
www.campdream.org
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