Sarcoma
Sarcoma – Full texts of all articles from this journal devoted to sarcoma are available at: http://www.hindawi.com/journals/srcm/contents.html
Sarcomas as a Paradigm for Personalized Medicine and Targeted Therapies: New Directions and Innovative Approaches to Diagnosis and Treatments CME/CE
An Enduring Archived Webcast
Download the archived webcast
Expiration Date: June 29, 2009
Program Chair
George D. Demetri, MD
Director, Ludwig Center at Dana-Farber/Harvard Cancer Center and Sarcoma Center
Dana-Farber Cancer Institute
Program Faculty
Ramzi Dagher, MD
Deputy Division Director, DDOP/OODP/CDER
US Food and Drug Administration
Lee J. Helman, MD
Scientific Director for Clinical Research
Center for Cancer Research
National Cancer Institute
Brian Rubin, MD, PhD
Director, Soft Tissue Pathology
Cleveland Clinic
Lerner Research Institute and
Taussig Cancer Center
Mark Thornton, MD, PhD
President
Sarcoma Foundation
of America
Patient Registry Program
The Sarcoma Foundation of America (SFA) is managing a Sarcoma Patient Registry Program. The Registry records the significant events of the history and treatment of patients diagnosed with Sarcoma. The Registry is a data collection and reporting system hosted by Registry Partners and managed by SFA.
The Registry’s endeavor is to collect, store, analyze and interpret data on persons with sarcoma. SFA invites you to participate in its efforts to make the Sarcoma Patient Registry information as accurate and comprehensive as possible. By contributing, your data will be a valuable resource for oncologist and researchers conducting clinical trials and medical studies. Most of all, you will be helping to improve the care of current and future sarcoma patients.
You are eligible to join the Registry if you have been diagnosed with ANY sarcoma subtype.
If you have any questions or would like to join the Sarcoma Patient Registry, please send an email to sfa@registrypartners.com with your contact information and the most convenient time and method to contact you, or you can call toll free at (866) 501-6780
Resources
American Cancer Society
[http://www.cancer.org/]
Oncolink - Cancer Information for Professionals and Lay Persons
[http://www.oncolink.com/]
CancerNet: PDQ - NCI's Comprehensive Cancer Database
[http://www.cancer.gov/cancertopics/pdq/cancerdatabase]
Steve Dunn's Cancer Guide - Patient Perspective
[http://cancerguide.org/]
People Living With Cancer - A patient website from the Amercian Society of Clinical Oncology (ASCO)
[http://www.plwc.org/portal/site/PLWC]
Cancer Source - Comprehensive Cancer Information and Resources
[http://www.cancersource.com/]
The Doctors Doctor - Interpret Pathology Reports (for a fee)
[http://www.thedoctorsdoctor.com/f_home.html]
Cancer 411 - Cancer Information and Resources
[http://www.cancer411.org/]
FDA's Oncology Tools
[http://www.fda.gov/cder/cancer/]
The Brain Tumor Society
[http://www.tbts.org/]
Find Cancer Experts - Free Referrals for Pathologist Second Opinion
[http://www.findcancerexperts.com/]
Cancer Information Network
[http://www.cancernetwork.com/]
Nature Reviews Websites
[http://www.nature.com/nrc/info/info_links.html]
InteliHealth - Comprehensive Health Information
[http://www.intelihealth.com]
Cancer Information and Support International
[http://www.cancer-info.com/]
Oncology Nursing Society Patient Education Page
[http://www.ons.org/patientEd/]
Drug Information
ACS Cancer Reference Info, click on Cancer Drug Guide
[http://www.cancer.org/docroot/cri/cri_0.asp]
American Cancer Society's List of Information about Cancer Drugs
[http://www.cancer.org/docroot/ETO/eto_0.asp]
Rx List - The Internet Drug Index
[http://www.rxlist.com/]
The Medicine Program - Accessing Free Medication
[http://www.themedicineprogram.com/]
Needy Meds - Drug Assistance
[http://www.needymeds.com/]
Medscape's Drug Info
[http://www.medscape.com/druginfo]
Access to Unapproved Drugs
[http://www.fda.gov/cder/cancer/access.htm]
American Society of Health System Pharmacists
[http://www.ashp.org/]
Other Resources
Cancer Care - Counseling, Education and Comprehensive Resource Guide
[http://www.cancercare.org/]
Cancer Survival Toolbox - Free Audio Program Teaching Self Advocacy Skills
[http://www.canceradvocacy.org/programs/toolbox.html]
Oncology.com - Living with Cancer
[http://www.oncology.com/]
National Cancer Institute - Coping with Cancer
[http://www.cancer.gov/cancerinfo/coping]
The Wellness Community - Free Professional Support Services
[http://www.wellness-community.org/]
Look Good... Feel Better - Free Service for Women and Teens with Cancer
[http://lookgoodfeelbetter.org/]
Cancer Supportive Care Program - Comprehensive Coping Guide
[http://www.cancersupportivecare.com/]
National Coalition for Cancer Survivorship - Advocacy
[http://www.canceradvocacy.org/]
Vital Options International - Telesupport Cancer Network and Radio Program
[http://www.vitaloptions.org/]
Pain Management Resource
[http://www.partnersagainstpain.com/]
World of Information on Pain
[http://www.pain.com/]
American Pain Society
[http://www.ampainsoc.org/]
National Comprehensive Cancer Network Pain Guidelines
[http://www.nccn.org/patient_gls/_english/_pain/index.htm]
Side Effects of Chemotherapy - Anemia
[http://www.medscape.com/mp/rc/anemia]
Fatigue
[http://www.cancerfatigue.org/]
National Lymphedema Network
[http://www.lymphnet.org/]
Disability
Social Security - Disability Programs
[http://www.ssa.gov/disability/]
Americans with Disabilities Act - Questions & Answers
[http://www.usdoj.gov/crt/ada/qandaeng.htm]
Hospice and Palliative Care
National Hospice and Palliative Care Organization
[http://www.nhpco.org/]
The Natural Death Care Project
[http://www.naturaldeathcare.org/]
Hospice Foundation of America
[http://www.hospicefoundation.org/]
Research
Office of Rare Disease's
[http://ord.aspensys.com/asp/resources/rsch_trials.asp]
Pub Med - Free Searches of US National Library of Medicine
[http://www.ncbi.nlm.nih.gov/entrez/query.fcgi]
Medscape Oncology Home Page
[http://www.medscape.com/Home/Topics/oncology/oncology.html]
Office of Rare Diseases
[http://rarediseases.info.nih.gov/]
AACR - American Association for Cancer Research
[http://www.aacr.org/]
Quackwatch - Guide to Health Fraud
[http://www.quackwatch.com/]
CancerProtocol.com
[http://www.cancerprotocol.com/]
Nutritional Research
[http://www.realtime.net/anr/]
On-line Science and Medical Dictionaries
[http://www.sciencekomm.at/advice/dict.html#chem2=20]
BioMedNet - Medline Access
[http://research.bmn.com/medline]
What is Angiogenesis?
[http://www.regardinghealth.com/Nebraska/CC/2001/07/11185.asp]
Developing Cancer Therapies
[http://ctep.info.nih.gov]
International Bibliographic Information on Dietary Supplements
[http://ods.od.nih.gov/showpage.aspx?pageid=48]
Radiation Therapies
Cancernet's Radiation Therapy and You
[http://www.cancer.gov/cancerinfo/radiation-therapy-and-you]
Staten Island, NY University Hospital - Radiation Oncology
[http://www.radiosurgury@siuh.edu/conindex5.html]
Fermi National Accelerator Laboratory - Neutron Beam Radiation
[http://adwww.fnal.gov/www/ntf/ntf_home.html]
Loma Linda, CA, University Medical Center - Proton Beam Radiotherapy
[http://www.llu.edu/proton/]
National Association for Proton Therapy
[http://www.proton-therapy.org/]
San Diego Gamma Knife Center
[http://www.sdgkc.com/]
Miscellaneous
Hemipelvectomy and Hip-Disarticulation Amputee Support and Information Site
[http://www.hphdhelp.org/]
Amputee Coalition of America
[http://www.amputee-coalition.org/]
Institute for Limb Preservation - Denver, CO
[http://www.limbpres.com/]
The Center for Orthopedic Oncology and Musculoskeletal Research
[http://www.sarcoma.org/main.php?page=lss]
National Institute's of Health Chemotherapy and You
[http://www.cancer.gov/cancerinfo/chemotherapy-and-you]
CyberMedTrials.org - Chemotherapy and Drug Side Effects
[http://www.cybermedtrials.org]
Angiogenesis Inhibitors for Cancer Treatment: The Basics
[http://press2.nci.nih.gov/sciencebehind/angiogenesis/angio00.htm]
Procrit.com - Anemia and Fatigue
[http://procrit.com/oncology/index.html]
Quackwatch - Guide to Health Fraud
[http://www.quackwatch.org/]
Medscape - Cancer Pain Management Resource Center
[http://www.medscape.com/pages/editorial/resourcecenters/public/painmgmt/rc-painmgmt.ov]
Cancer Pain Management Resource Center
[http://www.medscape.com/pages/editorial/resourcecenters/public/painmgmt/rc-painmgmt.ov] |
