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| Subject | Posted by | Replies | Time |
| Pregnancy and sarcoma Hi. My name is Lauri and I am 30 years old. I have an epithiloid sarcoma that started in my leg and then metastasized to my lungs 2 years after surgery and radiation. I had chemo and 2 thorocatomies... |
lamauldi | 2 | 11-04-2008 |
 Re: Pregnancy and sarcoma |
miami-em | 1 | 11-13-2008 |
| Re: Pregnancy and sarcoma |
lamauldi | 0 | 11-21-2008 |
| Anyone with experience with Reolysin? Compiled what I know at http://cancerwife.com/content/reolysin. Latest I know of, a SS patient with lung mets achieved stability and lung mets shown to be metabolically dead. I was wondering if an... |
SSHusband | 4 | 11-05-2008 |
| Re: Anyone with experience with Reolysin? |
elodie | 1 | 11-07-2008 |
| Re: Anyone with experience with Reolysin? |
SSHusband | 0 | 11-17-2008 |
| Re: Anyone with experience with Reolysin? |
carmyk | 1 | 11-19-2008 |
| Re: Anyone with experience with Reolysin? |
SSHusband | 0 | 11-21-2008 |
| Vaccine & Dendritic cell therapy at ITL I also wanted to share with everyone a Vaccine that I am & have been doing for 10 weeks now. If your like me you have looked under every rock to find a treatment or way of stopping these sarcoma's. I ... |
michelle paternoster | 0 | 11-20-2008 |
| its baaaaack!!! dediff liposarcoma Hi Everyone, My husband who has dediff liposarcoma had his first CT scan after his surgery last June 2008 to remove the tumor that was left from his first surgery last Oct.2007. It appears that ther... |
Carolyn Potts | 1 | 11-01-2008 |
| Re: its baaaaack!!! dediff liposarcoma |
michelle paternoster | 0 | 11-20-2008 |
| Question about diets You guys seem to be quite knowledgeable about this stuff. Here's my quandary. I had a rare facial angiosarcoma about 2 years ago, had it cut out, then radiation. A month ago, a lump showed up in my s... |
creativeatlarge | 0 | 11-20-2008 |
| Question about diets You guys seem to be quite knowledgeable about this stuff. Here's my quandary. I had a rare facial angiosarcoma about 2 years ago, had it cut out, then radiation. A month ago, a lump showed up in my s... |
creativeatlarge | 0 | 11-20-2008 |
| Pain After Surgery? My husband will have surgery on December 1st to remove his tumor. They said they will remove at least 3 to 4 of his ribs. He has fibrosarcom ( cancer of the chest wall). Has anyone been thru this su... |
cancer08 | 1 | 11-17-2008 |
| Re: Pain After Surgery? |
emb | 0 | 11-20-2008 |
| Brivanib I just started a clinical trial for a new antiangiogenic drug called Brivanib - alaninate at MSKCC. I have high grade mixed sarcoma's of the sinus's & skull base. I also met a girl who started a w... |
michelle paternoster | 0 | 11-19-2008 |
| retroperitoneal sarcoma biopsy is it safe? HI everyone, Today we went to find out the results of the latest cat scan on my husband's tumors. Afterrounds of chemo. Two seem to have been affected ( by his waist) but a third one in front of hi... |
Ofelia | 6 | 10-17-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
helpmyhubby | 0 | 11-05-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
wellsister | 0 | 11-05-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
emb | 2 | 11-06-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
ericsfight | 0 | 11-10-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
ericsfight | 0 | 11-10-2008 |
| Re: retroperitoneal sarcoma biopsy is it safe? |
LindsayASPS | 0 | 11-18-2008 |
| St. Vincent's Cancer Center Does anyone have any experience with St. Vincent's Cancer Center? It's supposed to be a sarcoma center.... |
g.crayon | 2 | 11-17-2008 |
| Re: St. Vincent's Cancer Center |
lgolubov | 0 | 11-17-2008 |
| Re: St. Vincent's Cancer Center |
lgolubov | 0 | 11-18-2008 |
| Pain After Surgery? My husband will have surgery on December 1st to remove his tumor. They said they will remove at least 3 to 4 of his ribs. He has fibrosarcom ( cancer of the chest wall). Has anyone been thru this su... |
cancer08 | 0 | 11-17-2008 |
| new to this Hello all. My dh recently had an MRI for a lump on his back, on his right lat. I wasnt there, but he told me that the radiologist had written "probably cancer" on the film (is that ethical?!) The doct... |
Daveswife | 0 | 11-17-2008 |
| LGFMS-HSCTGR yeah, lots of letters in that one! every now and again i just like to take a pulse of the group and see if anyone is lurking here who was diagnosed with low grade fibromyxoid sarcoma (and to go way o... |
liamhalesmom | 7 | 11-07-2008 |
| low grade fibromyxoid sarcoma |
liamhalesmom | 0 | 11-08-2008 |
| Re: LGFMS-HSCTGR |
fireball | 1 | 11-08-2008 |
| Re: LGFMS-HSCTGR |
liamhalesmom | 0 | 11-09-2008 |
| Re: LGFMS-HSCTGR |
boosek | 1 | 11-09-2008 |
| Re: LGFMS-HSCTGR |
ledmundson | 1 | 11-10-2008 |
| Re: LGFMS-HSCTGR |
boosek | 1 | 11-10-2008 |
| Re: LGFMS-HSCTGR |
liamhalesmom | 0 | 11-17-2008 |
| possible cyst in LGFMS site 5+ years out-please help Hi Everyone, our now 18 year old daughter was diagnosed with a low-grade fibromyxoid sarcoma in April 2003. It was resected with negative margins after the first surgery removed it and did not know w... |
jobsab1 | 4 | 11-12-2008 |
| Re: possible cyst in LGFMS site 5+ years out-please help |
jnkrohn | 0 | 11-12-2008 |
| Re: possible cyst in LGFMS site 5+ years out-please help |
fireball | 0 | 11-16-2008 |
| Re: possible cyst in LGFMS site 5+ years out-please help |
ChristyL | 0 | 11-16-2008 |
| Re: possible cyst in LGFMS site 5+ years out-please help |
liamhalesmom | 0 | 11-17-2008 |
| 2-years from ? Could someone tell me, when they say that a person is considered a survivor after two years, when do you start counting that? Is it after the chemo treatments are completed? I mean, if you are clear t... |
Guaz | 3 | 10-29-2008 |
| Re: 2-years from ? |
cancersurvivor2007 | 1 | 10-30-2008 |
| Re: 2-years from ? |
Suzid | 0 | 10-30-2008 |
| Survivorship |
amie | 0 | 11-16-2008 |
| Diagnosing A Rare Disease - Like Sarcoma From About.com - Getting a correct diagnosis is often a major challenge for someone who has a rare disease. Many people are unable to get a diagnosis, are misdiagnosed or have one diagnosis then ano... |
SEAZ-STS | 0 | 11-16-2008 |
| after 2 years cancer free still-lipo sarcoma This is for all of you out there fighting for you limbs and lives. Lipo Sarcoma can be beat. Stay strong, stay positive, keep informed, and never lose hope. I am now 2 years cancer free after going th... |
cindyh11 | 0 | 11-16-2008 |
| yondelis Does anyone know if Yondelis is available in Canada? the U.S.? thank you ... |
valerie | 1 | 11-14-2008 |
| Re: yondelis |
SEAZ-STS | 0 | 11-15-2008 |
| Synovial sarcoma attached to Elbow joint bone, Hello, This is my first post after my first line of treatment, Surgery and radiation. My surgeon had given me two options 1. Elbow replacment, 2. Radiation. I choose radiation over more radical s... |
ferns_tito | 4 | 11-12-2008 |
| Re: Synovial sarcoma attached to Elbow joint bone, |
Olga | 1 | 11-13-2008 |
| Re: Synovial sarcoma attached to Elbow joint bone, |
Loving_daughter | 1 | 11-14-2008 |
| Re: Synovial sarcoma attached to Elbow joint bone, |
ferns_tito | 1 | 11-14-2008 |
| Re: Synovial sarcoma attached to Elbow joint bone, |
loving_daughter | 0 | 11-14-2008 |
| coughing tumor mass hi everybody. please my friend has soft tissue sarcoma metastasizing to lungs and under chemo..however he now get attack of dyspnea followed by coughing of a tissue and blood clot on pathology it poro... |
sosomama | 0 | 11-14-2008 |
| Clinical Trials for Liposarcoma Hi Does anyone know any good website or database for finding out about current clinical trials for sarcoma, and more specifically liposarcoma? I have just got out of hospital after having a recurren... |
Rajiv75 | 2 | 11-11-2008 |
| Re: Clinical Trials for Liposarcoma |
Olga | 0 | 11-11-2008 |
| Re: Clinical Trials for Sarcoma |
mimiolsson | 0 | 11-12-2008 |
| Does anyone know if sarcomas express opioid receptors? Hi there, I'm looking into Low-dose Naltrexone as a possible adjunct for Synovial Sarcoma. The main information source is http://www.lowdosenaltrexone.org/ldn_and_cancer.htm. They say that LDN seems... |
SSHusband | 0 | 11-12-2008 |
| Survivor I have to thank all of you for your support over the past couple of years. I was diagnosed in September of 2006 with epithloid sarcoma in the groin. I had 4 surgeries. Then I had radiation and chemo a... |
lambli | 2 | 11-11-2008 |
| Re: Survivor |
Olga | 1 | 11-11-2008 |
| Re: Survivor |
lambli | 0 | 11-12-2008 |
| Metastatic Monophasic SS - Need Advice I'm looking for some advice. A relative has metastatic synovial sarcoma. Site of original tumor was amputated; mets in both lungs, spine, leg (stump), arm (broken), and now back of skull. Started D... |
Kumatra_24 | 1 | 11-10-2008 |
| Re: Metastatic Monophasic SS - Need Advice |
Olga | 0 | 11-11-2008 |
| lung mets, gem/tax I see on the list a few people have had gemcitabine, docetaxel for lung mets. How did you manage? Did it work? did the mets return? How long can you stay on Gem/tax for? Is there a lifetime limit l... |
valerie | 0 | 11-11-2008 |
| Fibrosarcom Thanks to everyone that replied to my message. So we finally have an appointment with a surgen at John Hopkins on Friday Nov 14. Not sure when they will schedule the surgery. Before contacting Joh... |
cancer08 | 1 | 11-10-2008 |
| Re: Fibrosarcom |
mtnlovngal | 0 | 11-11-2008 |
| EMC right foot I think my case is very rare. The tumor is on the bottom of the right foot. It was misdiagonised with sport injury. First found the tumor was in 2004 with MRI. Recurrences on 2007, Anyone can shar... |
chao | 4 | 11-09-2008 |
| Re: EMC right foot |
Olga | 1 | 11-09-2008 |
| Re: EMC right foot |
chao | 0 | 11-10-2008 |
| Re: EMC right foot |
natalieEMC | 1 | 11-11-2008 |
| Re: EMC right foot |
Chao | 0 | 11-11-2008 |
| Second Opinion Has anybody had trouble getting a second opinion from a center? We contacted MD Anderson and they said they don't do second opinions. Our doctor is the one that recommended them as a contact.... |
Guaz | 18 | 10-28-2008 |
| Re: Second Opinion |
amysue | 0 | 10-28-2008 |
| Re: Second Opinion |
joesp | 0 | 10-28-2008 |
| Re: Second Opinion |
Ginger13 | 0 | 10-28-2008 |
| Re: Second Opinion |
floss | 0 | 10-29-2008 |
| Re: Second Opinion |
SEAZ-STS | 2 | 10-29-2008 |
| Re: Second Opinion |
Guaz | 1 | 10-29-2008 |
| Re: Second Opinion |
SEAZ-STS | 0 | 10-29-2008 |
| Re: Second Opinion |
Chris3 | 1 | 10-30-2008 |
| Denmark / Second Opinion |
mimiolsson | 0 | 10-30-2008 |
| Re: Second Opinion |
Guaz | 0 | 10-29-2008 |
| Re: Second Opinion |
Guaz | 0 | 10-29-2008 |
| Re: Second Opinion |
mtnlovngal | 1 | 11-02-2008 |
| Re: Second Opinion |
Guaz | 1 | 11-02-2008 |
| Re: Second Opinion |
mtnlovngal | 0 | 11-02-2008 |
| Re: Second Opinion |
bbohardt | 1 | 11-09-2008 |
| Re: Second Opinion |
Olga | 1 | 11-09-2008 |
| Re: Second Opinion |
Guaz | 1 | 11-09-2008 |
| Re: Second Opinion |
brettsmom | 0 | 11-10-2008 |
| Medical Identity Theft Scam Alert: Stealing Your Health by Medical Identity Theft By Sid Kirchheimer September 2006 - AARP Bulletin Today Joe Ryan is a pilot in a tailspin. His business, providing sightseeing tours in ... |
SEAZ-STS | 0 | 11-10-2008 |
| Mixoid Lipo Sarcoma of the buttock Hiya i am a survivor of mixiod lipo sarcoma in my left buttok and leg i had a operation to remove the tumour which was 42 cm high grade stage3, so i have a large scare where they had to remove two mus... |
Michelle Scully | 9 | 11-07-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
Olga | 2 | 11-07-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
michelle scully | 1 | 11-08-2008 |
| a message from Arlette (repost) |
Olga | 0 | 11-09-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
mimiolsson | 0 | 11-09-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
robruce88 | 1 | 11-08-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
michelle scully | 0 | 11-09-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
ericaee | 1 | 11-08-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
michelle scully | 0 | 11-09-2008 |
| Re: Mixoid Lipo Sarcoma of the buttock |
kingcibola | 0 | 11-10-2008 |
| LMS HELLO EVERYONE, I HAVE BEN FIGHTING LMS FOR ABOUT 4 YEARS NOW. I AM GETTING READY FOR NEW CLINICAL TRIAL. WAS WONDERING IF THERE IS ANYBODY OUT THRE WITH THE SAME TO TALK TO?... |
IRONMAN529 | 2 | 11-04-2008 |
| Re: LMS |
ericsfight | 0 | 11-09-2008 |
| Re: LMS |
ericsfight | 0 | 11-09-2008 |
| My niece diaognosed for asps Hello! Everyone can any one help me out in finding out treatment for asps who has been detected for metastat in lung where she had got 7 tumors in lung she is 18 years old.... |
vijaymunoth | 2 | 11-08-2008 |
| Re: My niece diaognosed for asps |
Olga | 0 | 11-08-2008 |
| Re: My niece diaognosed for asps |
LindsayASPS | 0 | 11-09-2008 |
| Synovial Sarcoma in forearm My wife had a tumor in her arm , they removed it after chemo, radiation. 9 months later it has spread to lungs, 5 or 6 nodes about 8MM both lungs. Dr. telling her to wait till they get bigger for surg... |
lbeane | 13 | 10-14-2008 |
| Re: Synovial Sarcoma in forearm |
Olga | 1 | 10-14-2008 |
| Re: Synovial Sarcoma in forearm |
maxpj | 1 | 11-08-2008 |
| Re: Synovial Sarcoma in forearm |
Olga | 0 | 11-09-2008 |
| Re: Synovial Sarcoma in forearm |
wellsister | 0 | 10-14-2008 |
| Re: Synovial Sarcoma in forearm |
thumper | 1 | 10-15-2008 |
| Re: Synovial Sarcoma in forearm |
lbeane | 1 | 10-15-2008 |
| Re: Synovial Sarcoma in forearm |
omajoy | 0 | 10-25-2008 |
| Re: Synovial Sarcoma in forearm |
loving_daughter | 1 | 10-15-2008 |
| Re: Synovial Sarcoma in forearm |
survivor37 | 1 | 11-07-2008 |
| Re: Synovial Sarcoma in forearm |
Olga | 1 | 11-07-2008 |
| Re: Synovial Sarcoma in forearm |
survivor03 | 0 | 11-08-2008 |
| Re: Synovial Sarcoma in forearm |
life4now | 1 | 11-07-2008 |
| Re: Synovial Sarcoma in forearm |
Olga | 0 | 11-07-2008 |
| sarcoma in hip Hi ya i have just read your message and feel so sorry for you. It must be awful not knowing wether or not to ask how long your mum has left to live although me and my husband was in a simular situatio... |
michelle scully | 0 | 11-08-2008 |
| Very low vitamin B12 - a response to chemo, anaesthetic or surgery? My father has very low vitamin B12 level come back in his blood work. This can apparently affect energy levels and memory. He is feeling very down, and tired, and "just not right" as he put it, and hi... |
Loving_daughter | 2 | 11-07-2008 |
| Re: Very low vitamin B12 - a response to chemo, anaesthetic or surgery? |
AngieLove | 0 | 11-07-2008 |
| Re: Very low vitamin B12 - a response to chemo, anaesthetic or surgery? |
Olga | 0 | 11-07-2008 |
| Fibrosarcom Hi, My Husband was diagnosed with stage 3 firbrosarcom ( cancer of the chest wall) on october 2nd. we are going to john hopkins hopefully soon, they are suppose to contact us on monday. I would love... |
cancer08 | 3 | 11-07-2008 |
| Re: Fibrosarcom |
emb | 0 | 11-07-2008 |
| Re: Fibrosarcom |
SEAZ-STS | 0 | 11-07-2008 |
| Re: Fibrosarcom |
Olga | 0 | 11-07-2008 |
| cancer centers can anybody recommend a good sarcoma center in the san fran area? I know stanford and uscf but does which one?... |
survivor37 | 5 | 11-07-2008 |
| Re: cancer centers |
darrell | 0 | 11-07-2008 |
| Re: cancer centers |
darrell | 0 | 11-07-2008 |
| Re: cancer centers |
darrell | 0 | 11-07-2008 |
| Re: cancer centers |
darrell | 0 | 11-07-2008 |
| Re: cancer centers |
darrell | 0 | 11-07-2008 |
| Take Off Weight From the American Cancer Society - Increased Evidence of Dietary Link to Cancer - http://tinyurl.com/5bo8d6 I weigh only 150# at 5 feet/9 inches....... But I still get recurs. Go figure....... ... |
SEAZ-STS | 3 | 11-04-2008 |
| Re: Take Off Weight |
SEAZ-STS | 0 | 11-04-2008 |
| Re: Take Off Weight |
elodie | 1 | 11-05-2008 |
| Re: Take Off Weight |
liamhalesmom | 0 | 11-07-2008 |
| Mixoid Lipo Sarcoma of the buttock Hiya i am a survivor of mixiod lipo sarcoma in my left buttok and leg i had a operation to remove the tumour which was 42 cm high grade stage3, so i have a large scare where they had to remove two mus... |
Michelle Scully | 0 | 11-07-2008 |
| workman's compensation I hope that I am not dominating the message board I know that my cancer is minor compared to some on the board,its just information is so hard to find about leiomyosarcoma, in any case has anyone ... |
rwilson | 1 | 11-06-2008 |
| Re: workman's compensation |
lgoddard | 0 | 11-07-2008 |
| ALIMTA AND GEMZAR This is a clinical trial here in NY, that Dr Robert Taub of Columbia is recommending, Anybody have any information on it?... |
bruce | 1 | 11-04-2008 |
| Re: ALIMTA AND GEMZAR |
elodie | 0 | 11-07-2008 |
| possible synovial sarcoma recurrence I would like some information on possible recurrence of my husband's synovial sarcoma. Followup MRI of leg says "possible recurrence". Just found out tonight. Have not talked to surgeon. In the event ... |
Kristine Whitman | 3 | 11-04-2008 |
| Re: possible synovial sarcoma recurrence |
Olga | 0 | 11-05-2008 |
| Re: possible synovial sarcoma recurrence |
omajoy | 0 | 11-05-2008 |
| Re: possible synovial sarcoma recurrence |
mtnlovngal | 0 | 11-06-2008 |
| Question Good Evening everyone, I just had a couple of questions ,I have leiomyosarcoma stage 2. I had surgery to remove a softball size tumor from atop my left adrenal gland unfortunately it had dirty margi... |
rwilson | 8 | 11-01-2008 |
| Re: Question |
rtsteve5360 | 0 | 11-01-2008 |
| Re: Question |
mtnlovngal | 3 | 11-02-2008 |
| Re: Question |
Tom D. | 0 | 11-03-2008 |
| Re: Question |
ericsfight | 2 | 11-03-2008 |
| Re: Question |
SSHusband | 0 | 11-05-2008 |
| Re: Question |
mtnlovngal | 0 | 11-06-2008 |
| Re: Question |
ericsfight | 0 | 11-03-2008 |
| Re: Question |
kingcibola | 0 | 11-03-2008 |
| Hello. New To This. Cardiac Angiosarcoma Hello. I am really glad I came across this board. I have been searching for something like this to try to connect with others that have been diagnosed with sarcoma, and maybe more specifically, card... |
wmccaffr | 1 | 11-06-2008 |
| Re: Hello. New To This. Cardiac Angiosarcoma |
allen | 0 | 11-06-2008 |
| seekinghelp....husbands diagnosis Thank you all for responding after my cry for help while we were waiting for the patholgy report for my husbands prognosis. Today we learned he had Ewings Sarcoma. It we what I thought it might be fr... |
seekinghelp | 3 | 10-20-2008 |
| Re: seekinghelp....husbands diagnosis |
cpd | 0 | 11-01-2008 |
| Re: seekinghelp....husbands diagnosis |
lisa k. | 1 | 11-05-2008 |
| Re: seekinghelp....husbands diagnosis |
lisa k. | 0 | 11-05-2008 |
| facebook flair I have posted a piece of flair on facebook for O2H if anyone wants it. Anyone creative to make a ribbon with the sunflower in the middle??? I'd love to have one of those!... |
angio31 | 0 | 11-05-2008 |
| Vitamin C impedes chemo: study Cancer patients who take vitamin C during chemotherapy may be doing themselves harm, according to new research that suggests the popular vitamin helps keep cancer cells alive. Studies in mice and huma... |
mimiolsson | 0 | 11-05-2008 |
| Extrastetelal Myxoid Chondrosarcoma I had Extrastetelal Myxoid Chondrosarcoma on the right bottom of the foot (very rare) in late 2004 and I have the tumor removed. The recurrence is Aug 2007. I did the "Cyber Knife" for 5 treatments... |
Chao | 2 | 11-05-2008 |
| Re: Extrastetelal Myxoid Chondrosarcoma |
SSHusband | 0 | 11-05-2008 |
| Re: Extrastetelal Myxoid Chondrosarcoma |
mimiolsson | 0 | 11-05-2008 |
| Help for my mother My mother who is 67 years old was diagnosed with an undifferentiated soft tissue sarcoma 5 months ago. She also has Neurofibromatosis, and because of that, all her doctors dismissed the growing tumor... |
emb | 2 | 11-04-2008 |
| Re: Help for my mother |
Olga | 0 | 11-05-2008 |
| Re: Help for my mother |
SSHusband | 0 | 11-05-2008 |
| Radiation during surgery I am due to go in this Wednesday for thoracic surgery to remove a recurrent tumor from my chest (mediastinum). The doctors at Sloan are proposing to do some adjuvant radiation during the operation. ... |
Rajiv75 | 3 | 11-03-2008 |
| Re: Radiation during surgery |
elodie | 1 | 11-04-2008 |
| Re: Radiation during surgery |
SEAZ-STS | 0 | 11-04-2008 |
| Re: Radiation during surgery |
omajoy | 0 | 11-05-2008 |
| Brachytherapy/synovial sarcoma recurrence Tomorrow I have consult with radiology oncologist at Moffitt in Tampa, FL to discuss brachy. Recurrence of synovial sarcoma tumor in right thigh, removed June /07 with lung mets in June /08 (two surge... |
omajoy | 0 | 11-05-2008 |
| One of the lucky ones? I have posted here a few times and read the stories and find inspiration here. My 6 month journey with a Liposarcoma of the epigottis is over for now. It has taken two surgeries and alot of sleepless ... |
floss | 0 | 11-04-2008 |
| mets on the lungs To all those on the list who have had mets removed from the lungs-- My husband and I just got the report of his CT scan today from MSK. Since his surgery in June to remove his dediff tumor with cle... |
Carolyn Potts | 1 | 11-03-2008 |
| Re: mets on the lungs |
Olga | 0 | 11-03-2008 |
| Do you have LSM located on leg? I am looking for other's who have been diagnosed with LSM and the tumor was located on the leg.... |
Guaz | 4 | 11-03-2008 |
| Re: Do you have LSM located on leg? |
warren bailey | 2 | 11-03-2008 |
| Re: Do you have LSM located on leg? |
Guaz | 0 | 11-03-2008 |
| Re: Do you have LSM located on leg? |
Guaz | 0 | 11-03-2008 |
| Re: Do you have LSM located on leg? |
mimiolsson | 0 | 11-03-2008 |
| why a PET now? I have had AIM chemo, surgery to remove synovial sarcoma tumor in leg, 25 radiations since March 2007. Had lung mets this summer on both lobes with VATS to remove those. Just told I had recurrence o... |
omajoy | 3 | 10-31-2008 |
| Re: why a PET now? |
mtnlovngal | 1 | 11-02-2008 |
| Re: why a PET now? |
omajoy | 1 | 11-03-2008 |
| Re: why a PET now? |
BeckyV | 0 | 11-03-2008 |
| Top referral centers for sarcoma research My wife had her 3rd metastasis, this one found in her pelvis and attached to the mesentery with subsequent resection of her cecum(lg intestine) and a portion of the illeum(sm intestine). She also had... |
jnkrohn | 1 | 11-02-2008 |
| Re: Top referral centers for sarcoma research |
Olga | 0 | 11-02-2008 |
| Fundraising for Sarcomas Hello all. I am new to this discussion board, but have been reviewing the website for some time as my best friend was diagnosed with a sarcoma last year. Two weeks ago, she passed away. While I wou... |
Jaime | 6 | 10-24-2008 |
| Re: Fundraising for Sarcomas |
weathergirl15 | 0 | 10-26-2008 |
| Re: Fundraising for Sarcomas |
mimiolsson | 1 | 10-26-2008 |
| Re: Fundraising for Sarcomas |
rtsteve5360 | 1 | 10-26-2008 |
| Re: Fundraising for Sarcomas |
Jaime | 1 | 10-27-2008 |
| Re: Fundraising for Sarcomas |
abc-survivors.net | 0 | 11-02-2008 |
| Re: Fundraising for Sarcomas |
septangel9 | 0 | 11-02-2008 |
| Possible side effects to AIM My medonc just informed me this morning that he is recommending AIM for my MFH high grade sarcoma. MD Anderson was in agreement with this. They are recommending 6 rounds of treatments spanning 4 and... |
rtsteve5360 | 7 | 10-31-2008 |
| Re: Possible side effects to AIM |
omajoy | 0 | 10-31-2008 |
| Re: Possible side effects to AIM |
katyb | 0 | 10-31-2008 |
| Re: Possible side effects to AIM |
rtsteve5360 | 1 | 10-31-2008 |
| Re: Possible side effects to AIM |
PattiE | 0 | 11-01-2008 |
| Re: Possible side effects to AIM |
mcmmom | 0 | 11-01-2008 |
| Re: Possible side effects to AIM |
joesp | 0 | 11-02-2008 |
| Re: Possible side effects to AIM |
mtnlovngal | 0 | 11-02-2008 |
| share it hi am sarcoma paient since two years and i took two diffrent type of chimotherapy but it didnt work..it looks like its all over the body now but am still alive... i would like to share my pain wiht so... |
babyror | 9 | 10-25-2008 |
| Re: share it |
Laura Kinser | 1 | 10-25-2008 |
| Re: share it |
babyror | 0 | 10-25-2008 |
| Re: share it |
life4now | 1 | 10-25-2008 |
| Re: share it |
babyror | 1 | 10-28-2008 |
| Re: share it |
loving_daughter | 0 | 10-29-2008 |
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rtsteve5360 | 0 | 10-29-2008 |
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Guaz | 1 | 10-29-2008 |
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babyror | 1 | 10-31-2008 |
| Re: share it |
Guaz | 0 | 10-31-2008 |
| CTOS 2008 meeting Connective tissue oncology society annual meeting is probably as close as we are going to get to an specialized international meeting dedicated to sarcomas only (as opposed to an general oncology meet... |
Olga | 0 | 10-31-2008 |
| yondelis not working anymore My mom had been on a port of Yondelis for a few months now. It was mostly stabilizing things for the most part. IN the last 3 weeks or so one of her larger tumors grew half an inch which is on her p... |
aubs1979 | 0 | 10-29-2008 |
| love or hate do you sarcoma patiants feel the desease while its getting bigger...coz i do sometimes specially the tumor up my head it started as a "normal' lump then it started to take many shapes now it looks lik... |
babyror | 1 | 10-28-2008 |
| Re: love or hate |
joesp | 0 | 10-28-2008 |
| myxoid liposarcoma/yondelis Hi all, Just another quick update on Tims journey with Yondelis. After 20 cycles the Oncologists have taken Tim off the drug for 3 months. Tims blood results were showing signs that his body (espec... |
stefanie | 0 | 10-28-2008 |
| Frankincense My mother-in-law is totally into essential oils and she has said that frankincense is a therapy for cancer. I am post-surgical MFH with no evidence to this point of mets. Has anyone heard of this? S... |
rtsteve5360 | 5 | 10-25-2008 |
| Re: Frankincense |
ctb | 0 | 10-27-2008 |
| Re: Frankincense |
Olga | 1 | 10-28-2008 |
| Re: Frankincense |
cancersurvivor2007 | 1 | 10-28-2008 |
| Re: Frankincense |
Olga | 1 | 10-28-2008 |
| Re: Frankincense |
cancersurvivor2007 | 0 | 10-28-2008 |
| CA125 expression in epithelioid sarcoma http://www.ncbi.nlm.nih.gov/pubmed/15078911 - This study clearly revealed the specificity and positivity of CA125 in ES. These data indicate that CA125 may be a useful tumor marker for diagnosing ES. ... |
sachin | 3 | 10-27-2008 |
| Re: CA125 expression in epithelioid sarcoma |
mimiolsson | 0 | 10-27-2008 |
| Re: CA125 expression in epithelioid sarcoma |
Ginger13 | 0 | 10-27-2008 |
| Re: CA125 expression in epithelioid sarcoma |
tammers | 0 | 10-28-2008 |
| new to the site Good Evening all, just got the news that I have liomyosarcoma, In my 50 years I never thought I would have cancer, It has sent a wave through my whole family. I had the tumor removed last month, W... |
rwilson | 2 | 10-13-2008 |
| Re: new to the site |
SEAZ-STS | 1 | 10-14-2008 |
| Re: new to the site |
babyror | 0 | 10-28-2008 |
| story of sarcoma am 27 years old and it started after i gave birth to my first child two and a half years ago.and at that time they said that the only solution is to have a surgery and i did it in the liver they had t... |
babyror | 2 | 10-25-2008 |
| Re: story of sarcoma |
sachin | 1 | 10-27-2008 |
| Re: story of sarcoma |
babyror | 0 | 10-28-2008 |
| concerning LMS I am seeing a surgical onocologist at UAB for LMS on my right lateral knee 2cm two surgeries frist surgery lms was in ink margins requiring wide margins wide margins were clear, My physician refuses ... |
sandy | 1 | 10-27-2008 |
| Re: concerning LMS |
rtsteve5360 | 0 | 10-27-2008 |
| Liposarcoma in chest area Four years ago my husband had a large tumor in his left chest area removed. We were told it was a benign thymoma. In March of this year he had another tumor in his left chest area removed. This time h... |
csbees | 2 | 10-24-2008 |
| Re: Liposarcoma in chest area |
Rajiv75 | 0 | 10-25-2008 |
| Re: Liposarcoma in chest area |
floss | 0 | 10-27-2008 |
| osteosarcoma, metastatic Hi, I posted earlier, but I am looking for survivors of metastatic osteosarcoma. I've heard the survival rate is lot less than non-metastatic, but I haven't come across any with mets that have survi... |
Val | 2 | 10-24-2008 |
| Re: osteosarcoma, metastatic |
Olga | 1 | 10-26-2008 |
| Re: osteosarcoma, metastatic |
maxPJ | 0 | 10-27-2008 |
| recovery for left lung/pleura/pericardium/diagphram surgery. anybody have a go on the recovery time? surgery survival rate? anything that would be helpful. Going to do qualificatory testing in 2 weeks. Thanks. Joe... |
joesp | 5 | 10-21-2008 |
| Re: recovery for left lung/pleura/pericardium/diagphram surgery. |
Olga | 1 | 10-21-2008 |
| Re: recovery for left lung/pleura/pericardium/diagphram surgery. |
joesp | 2 | 10-22-2008 |
| Re: recovery for left lung/pleura/pericardium/diagphram surgery. |
Olga | 1 | 10-22-2008 |
| Re: recovery for left lung/pleura/pericardium/diagphram surgery. |
joesp | 0 | 10-23-2008 |
| Re: recovery for left lung/pleura/pericardium/diagphram surgery. |
mtnlovngal | 0 | 10-26-2008 |
| Clinical Trial Info and Olga Olga, my mail is getting booted from your mailbox! MiMi [From article] In two other new studies presented at the meeting in Geneva, PharmaMar evaluated the therapeutic potential of IrvalecŪ and Zaly... |
mimiolsson | 2 | 10-26-2008 |
| Re: Clinical Trial Info and Olga |
Olga | 0 | 10-26-2008 |
| Re: Clinical Trial Info and Olga |
Olga | 0 | 10-26-2008 |
| Ewing's Sarcoma Help! I would like to hear from anyone who has been treated for recurrent Ewing's Sarcoma. My son has just been diagnosed with right lung metastasis and the recommendation is stem cell transplant. He does... |
annie55 | 2 | 10-22-2008 |
| Re: Ewing's Sarcoma Help! |
Olga | 1 | 10-26-2008 |
| Re: Ewing's Sarcoma Help! |
mimiolsson | 0 | 10-26-2008 |
| PET or CT scan, osteosarcoma My daughter has had PET scans and MRI's as follow up scans. Do lung mets not show up on PET scans?? Is that why they do a CT scan as well?? Thanks for any info. you have. Val... |
maxPJ | 1 | 10-26-2008 |
| Re: PET or CT scan, osteosarcoma |
Olga | 0 | 10-26-2008 |
| Clean Scans! Just wanted to report that my 14 year old daughter, Morgan, received another good scan report today! She moved from quarterly scans to bi-annual scans last April, so it was such great news to hear th... |
janetdailey@verizon.net | 6 | 10-21-2008 |
| Re: Clean Scans! |
katyb | 1 | 10-21-2008 |
| Re: Clean Scans! |
rtsteve5360 | 0 | 10-23-2008 |
| Re: Clean Scans! |
Suzid | 0 | 10-21-2008 |
| Re: Clean Scans! |
BeckyV | 0 | 10-22-2008 |
| Re: Clean Scans! |
Eva | 0 | 10-25-2008 |
| Re: Clean Scans! |
Jlyn | 0 | 10-25-2008 |
| What is the retroperitoneal sarcoma average survival rate Hi are there any patients with this type of sarcoma alive? What is the average survival rate? My husband was just taken off the ifosfamide and adriamicin chemos after 2 treatments and is going on two ... |
Ofelia | 5 | 10-17-2008 |
| Re: What is the retroperitoneal sarcoma average survival rate |
SSHusband | 0 | 10-18-2008 |
| Re: What is the retroperitoneal sarcoma average survival rate |
Olga | 0 | 10-18-2008 |
| Re: What is the retroperitoneal sarcoma average survival rate |
momb | 0 | 10-18-2008 |
| Re: What is the retroperitoneal sarcoma average survival rate |
joesp | 0 | 10-23-2008 |
| Re: What is the retroperitoneal sarcoma average survival rate |
wanderingrose | 0 | 10-24-2008 |
| Weathering the Storm Hi Everyone, I was reading an article in a supplement to Breat Lakes Publishing called My Turn called Weathering the Storm. It was about Kathleen Whitmer who evidently had a sarcoma back in 1978. wh... |
Carolyn Potts | 1 | 10-23-2008 |
| Re: Weathering the Storm |
rtsteve5360 | 0 | 10-23-2008 |
| McCain Vs. Obama On Cancer Care Interesting "Point-Of-View" - http://tinyurl.com/6lvqm3 So you can make your choice....... Stan... |
SEAZ-STS | 1 | 10-22-2008 |
| SPAM LINK (no messag) |
joesp | 0 | 10-23-2008 |
| fear of the unknown i had radition to pelic area is it normal for your stomach to be very sore after 5 weeks of not having radition also have ctscan nov 5 to make sure tumor is off the bone a little worried because i do... |
roxie | 1 | 10-22-2008 |
| Re: fear of the unknown |
joesp | 0 | 10-23-2008 |
| Treatment injuries Hello all, another newbee. Thank you for your help in asking and answereing questions. In FEb 07, my 20 year old daughter was diagnosed with inoperable retroperitonial synovial sarcoma. 17cm. stage... |
momb | 4 | 10-17-2008 |
| Re: Treatment injuries |
Laura Kinser | 0 | 10-21-2008 |
| Zometa treatment for osteopenia |
Olga | 1 | 10-21-2008 |
| Re: Zometa treatment for osteopenia |
Laura Kinser | 1 | 10-21-2008 |
| Re: Zometa treatment for osteopenia |
momb | 0 | 10-22-2008 |
| Success rate with chemo and MFH Can anyone tell me the success rate or lack thereof of chemo on a post-surgical MFH? I went to my oncololgist Friday and he is consulting MD Anderson in Houston on this matter. I have read there is ... |
rtsteve5360 | 5 | 10-19-2008 |
| Re: Success rate with chemo and MFH |
Tom D. | 0 | 10-19-2008 |
| Re: Success rate with chemo and MFH |
JOSEPHINES | 0 | 10-19-2008 |
| Re: Success rate with chemo and MFH |
loving_daughter | 0 | 10-19-2008 |
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